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Recent Publications by Members of the Pediatric Study Group

Guideline for the Management of Fever and Neutropenia in Children With Cancer and Hematopoietic Stem-Cell Transplantation Recipients: 2017 Update. Lehrnbecher T, Robinson P, Fisher B, Alexander S, Ammann RA, Beauchemin M, Carlesse F, Groll AH, Haeusler GM, Santolaya M, Steinbach WJ, Castagnola E, Davis BL, Dupuis LL, Gaur AH, Tissing WJE, Zaoutis T, Phillips R, Sung L. J Clin Oncol. 2017 May [Epub ahead of print]

Patients' and parents' views regarding supportive care in childhood cancer. Tenniglo LJA, Loeffen EAH, Kremer LCM, Font-Gonzalez A, Mulder RL, Postma A, Naafs-Wilstra MC, Grootenhuis MA, van de Wetering MD, Tissing WJE. Support Care Cancer. 2017 Apr 29.  [Epub ahead of print]

Guideline for the prevention of acute chemotherapy-induced nausea and vomiting in pediatric cancer patients: A focused update. Patel P, Robinson PD, Thackray J, Flank J, Holdsworth MT, Gibson P, Orsey A, Portwine C, Freedman J, Madden JR, Phillips R, Sung L, Dupuis LL. Pediatr Blood Cancer. 2017 Apr 28.  [Epub ahead of print]

Feeding strategies in pediatric cancer patients with gastrointestinal mucositis: a multicenter prospective observational study and international survey. Kuiken NSS, Rings EHHM, van den Heuvel-Eibrink MM, van de Wetering MD, Tissing WJE. Support Care Cancer. 2017 Apr 26. [Epub ahead of print]

GPs and paediatric oncology palliative care: a Q methodological study. Neilson S, Gibson F, Jeffares S, Greenfield SM. BMJ Support Palliat Care. 2017 Apr 21. [Epub ahead of print]

Long-Term Quality of Life in Adult Survivors of Pediatric Differentiated Thyroid Carcinoma. Nies M, Klein Hesselink MS, Huizinga GA, Sulkers E, Brouwers AH, Burgerhof JGM, van Dam EWCM, Havekes B, van den Heuvel-Eibrink MM, Corssmit EPM, Kremer LCM, Netea-Maier RT, van der Pal HJH, Peeters RP, Plukker JTM, Ronckers CM, van Santen HM, Tissing WJE, Links TP, Bocca G. J Clin Endocrinol Metab. 2017 Apr 1;102(4):1218-1226.

The importance of evidence-based supportive care practice guidelines in childhood cancer-a plea for their development and implementation. Loeffen EA, Kremer LC, Mulder RL, Font-Gonzalez A, Dupuis LL, Sung L, Robinson PD, van de Wetering MD, Tissing WJ. Support Care Cancer. 2017 Apr;25(4):1121-1125. Free Full Text

Guideline for the prevention of oral and oropharyngeal mucositis in children receiving treatment for cancer or undergoing haematopoietic stem cell transplantation. Sung L, Robinson P, Treister N, Baggott T, Gibson P, Tissing W, Wiernikowski J, Brinklow J, Dupuis LL. BMJ Support Palliat Care. 2017 Mar;7(1):7-16. Free Full Text

Multi-Professional Perspectives on Adolescent and Young Adult Oncology Across Europe: An e-Delphi Survey. Pini SA, Gibson F, Fern LA, Morgan SJ, Phillips RS, Stark DP. J Adolesc Young Adult Oncol. 2017 Mar;6(1):178-185.

Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis. Ngwenya N, Kenten C, Jones L, Gibson F, Pearce S, Flatley M, Hough R, Stirling LC, Taylor RM, Wong G, Whelan J. J Adolesc Young Adult Oncol. 2017 Jan 11. [Epub ahead of print]

2016 updated MASCC/ESMO consensus recommendations: Prevention of acute chemotherapy-induced nausea and vomiting in children. Dupuis LL, Sung L, Molassiotis A, Orsey AD, Tissing W, van de Wetering M. Support Care Cancer. 2017 Jan;25(1):323-331.

Psychosocial Interventions for Adolescents and Young Adults Diagnosed with Cancer During Adolescence: A Critical Review. Walker E, Martins A, Aldiss S, Gibson F, Taylor RM. J Adolesc Young Adult Oncol. 2016 Dec;5(4):310-321.

Determinants of ototoxicity in 451 platinum-treated Dutch survivors of childhood cancer: A DCOG late-effects study. Clemens E, de Vries AC, Pluijm SF, Am Zehnhoff-Dinnesen A, Tissing WJ, Loonen JJ, van Dulmen-den Broeder E, Bresters D, Versluys B, Kremer LC, van der Pal HJ, van Grotel M, van den Heuvel-Eibrink MM; DCOG-LATER, The Netherlands. Eur J Cancer. 2016 Dec;69:77-85.

Interventions for promoting participation in shared decision-making for children with cancer. Coyne I, O'Mathúna DP, Gibson F, Shields L, Leclercq E, Sheaf G. Cochrane Database Syst Rev. 2016 Nov 29;11:CD008970.

How young people describe the impact of living with and beyond a cancer diagnosis: feasibility of using social media as a research method. Gibson F, Hibbins S, Grew T, Morgan S, Pearce S, Stark D, Fern LA. Psychooncology. 2016 Nov;25(11):1317-1323.

Does socioeconomic status impact physical activity and sleep among children with cancer? Orsey AD, Wakefield DB. Pediatr Blood Cancer. 2016 Nov;63(11):2004-10.

Specialist nurse key worker in children's cancer care: Professionals' perspectives on the core characteristics of the role. Martins A, Aldiss S, Gibson F. Eur J Oncol Nurs. 2016 Oct;24:70-78.

Risk stratification in febrile neutropenic episodes in adolescent/young adult patients with cancer. Phillips RS, Bhuller K, Sung L, Ammann RA, Tissing WJ, Lehrnbecher T, Stewart LA; PICNICC Collaboration.. Eur J Cancer. 2016 Sep;64:101-6.

Late Cardiac Events after Childhood Cancer: Methodological Aspects of the Pan-European Study PanCareSurFup. Feijen EA, Font-Gonzalez A, van Dalen EC, van der Pal HJ, Reulen RC, Winter DL, Kuehni CE, Haupt R, Alessi D, Byrne J, Bardi E, Jakab Z, Grabow D, Garwicz S, Jankovic M, Levitt GA, Skinner R, Zadravec Zaletel L, Hjorth L, Tissing WJ, de Vathaire F, Hawkins MM, Kremer LC; PanCareSurFup consortium. PLoS One. 2016 Sep 19;11(9):e0162778. eCollection 2016. Free Full Text

Prevalence of Symptomatic and Asymptomatic Thrombosis in Pediatric Oncology Patients With Tunneled Central Venous Catheters. Schoot RA, van de Wetering MD, Stijnen T, Tissing WJ, Michiels E, Abbink FC, Raphael MF, Heij HA, Zwaan M, Lieverst JA, Caron HN, van Ommen H; DCOG-Aristocaths Supportive Care Working Group. Pediatr Blood Cancer. 2016 Aug;63(8):1438-44.

Hydrocortisone as an Intervention for Dexamethasone-Induced Adverse Effects in Pediatric Patients With Acute Lymphoblastic Leukemia: Results of a Double-Blind, Randomized Controlled Trial. Warris LT, van den Heuvel-Eibrink MM, Aarsen FK, Pluijm SM, Bierings MB, van den Bos C, Zwaan CM, Thygesen HH, Tissing WJ, Veening MA, Pieters R, van den Akker EL. J Clin Oncol. 2016 Jul 1;34(19):2287-93.

Fertility preservation in children, adolescents, and young adults with cancer: Quality of clinical practice guidelines and variations in recommendations. Font-Gonzalez A, Mulder RL, Loeffen EA, Byrne J, van Dulmen-den Broeder E, van den Heuvel-Eibrink MM, Hudson MM, Kenney LB, Levine JM, Tissing WJ, van de Wetering MD, Kremer LC; PanCareLIFE Consortium. Cancer. 2016 Jul 15;122(14):2216-23.

Preventing work-related stress among staff working in children's cancer Principal Treatment Centres in the UK: a brief survey of staff support systems and practices. Beresford B, Gibson F, Bayliss J, Mukherjee S. Eur J Cancer Care (Engl). 2016 Jul 4. [Epub ahead of print]

Modified international e-Delphi survey to define healthcare professional competencies for working with teenagers and young adults with cancer. Taylor RM, Feltbower RG, Aslam N, Raine R, Whelan JS, Gibson F. BMJ Open. 2016 May 3;6(5):e011361. Free Full Text

Chemotherapy-Induced Nausea and Vomiting Prophylaxis: Practice Within the Children's Oncology Group. Patel P, Robinson PD, Orsey A, Freedman JL, Langevin AM, Woods D, Sung L, Dupuis LL. Pediatr Blood Cancer. 2016 May;63(5):887-92.

Low bacterial diet versus control diet to prevent infection in cancer patients treated with chemotherapy causing episodes of neutropenia. van Dalen EC, Mank A, Leclercq E, Mulder RL, Davies M, Kersten MJ, van de Wetering MD. Cochrane Database Syst Rev. 2016 Apr 24;4:CD006247.

Predicting microbiologically defined infection in febrile neutropenic episodes in children: global individual participant data multivariable meta-analysis. Phillips RS, Sung L, Amman RA, Riley RD, Castagnola E, Haeusler GM, Klaassen R, Tissing WJ, Lehrnbecher T, Chisholm J, Hakim H, Ranasinghe N, Paesmans M, Hann IM, Stewart LA; PICNICC Collaboration.. Br J Cancer. 2016 Mar 15;114(6):623-30. Free Full Text  Correction in Br J Cancer. 2016 Jun 14;114(12):e17.

The perceptions of teenagers, young adults and professionals in the participation of bone cancer clinical trials. Pearce S, Brownsdon A, Fern L, Gibson F, Whelan J, Lavender V. Eur J Cancer Care (Engl). 2016 Mar 3. [Epub ahead of print]

Antiemetic medication for prevention and treatment of chemotherapy-induced nausea and vomiting in childhood. Phillips RS, Friend AJ, Gibson F, Houghton E, Gopaul S, Craig JV, Pizer B. Cochrane Database Syst Rev. 2016 Feb 2;2:CD007786. 

Very early discharge versus early discharge versus non-early discharge in children with cancer and febrile neutropenia. Loeffen EA, Te Poele EM, Tissing WJ, Boezen HM, de Bont ES. Cochrane Database Syst Rev. 2016 Feb 22;2:CD008382.

Risk of subsequent gastrointestinal cancer among childhood cancer survivors: A systematic review. Teepen JC, de Vroom SL, van Leeuwen FE, Tissing WJ, Kremer LC, Ronckers CM. Cancer Treat Rev. 2016 Feb;43:92-103. 

Varicella vaccination in pediatric oncology patients without interruption of chemotherapy. van de Wetering MD, Vossen MT, Jansen MH, Caron HN, Kuijpers TW. J Clin Virol. 2016 Feb;75:47-52. Free Full Text

Current variations in childhood cancer supportive care in the Netherlands.Loeffen EA, Mulder RL, van de Wetering MD, Font-Gonzalez A, Abbink FC, Ball LM, Loeffen JL, Michiels EM, Segers H, Kremer LC, Tissing WJ. Cancer. 2016 Feb 15;122(4):642-50. Free Full Text

Information-sharing between healthcare professionals, parents and children with cancer: more than a matter of information exchange. Coyne I, Amory A, Gibson F, Kiernan G. Eur J Cancer Care (Engl). 2016 Jan;25(1):141-56.

Risk-adapted approach for fever and neutropenia in paediatric cancer patients--a national multicentre study. Miedema KG, Tissing WJ, Abbink FC, Ball LM, Michiels EM, van Vliet MJ, de Vries WY, Kamps WA, Norbruis OF, Fiocco M, de Groot-Kruseman HA, van de Wetering MD, de Bont ES. Eur J Cancer. 2016 Jan;53:16-24

Classification of treatment-related mortality in children with cancer: a systematic assessment. Alexander S, Pole JD, Gibson P, Lee M, Hesser T, Chi SN, Dvorak CC, Fisher B, Hasle H, Kanerva J, Möricke A, Phillips B, Raetz E, Rodriguez-Galindo C, Samarasinghe S, Schmiegelow K, Tissing W, Lehrnbecher T, Sung L; International Pediatric Oncology Mortality Classification Group.. Lancet Oncol. 2015 Dec;16(16):e604-10. 

Building the Evidence for Nursing Practice: Learning from a Structured Review of SIOP Abstracts, 2003-2012. Gibson F, Vindrola-Padros C, Hinds P, Nolbris MJ, Kelly D, Kelly P, Ruccione K, Soanes L, Woodgate RL, Baggott C. Pediatr Blood Cancer. 2015 Dec;62(12):2172-6.

Cancer-Related Pain and Pain Management: Sources, Prevalence, and the Experiences of Children and Parents. Twycross A, Parker R, Williams A, Gibson F. J Pediatr Oncol Nurs. 2015 Nov-Dec;32(6):369-84.

Malnutrition is associated with worse health-related quality of life in children with cancer. Brinksma A, Sanderman R, Roodbol PF, Sulkers E, Burgerhof JG, de Bont ES, Tissing WJ. Support Care Cancer. 2015 Oct;23(10):3043-52. Free Full Text

A longitudinal case-control study on goals in adolescents with cancer. Sulkers E, Janse M, Brinksma A, Roodbol PF, Kamps WA, Tissing WJ, Sanderman 

R, Fleer J. Psychol Health. 2015;30(9):1075-87.

Clinical implications of malnutrition in children with cancer. Loeffen EA, Brinksma A, Tissing WJ. Support Care Cancer. 2015 Sep;23(9):2523-4.

Prevention of central venous catheter-associated bloodstream infections in paediatric oncology patients using 70% ethanol locks: A randomised controlled multi-centre trial. Schoot RA, van Ommen CH, Stijnen T, Tissing WJ, Michiels E, Abbink FC, Raphael MF, Heij HA, Lieverst JA, Spanjaard L, Zwaan CM, Caron HN, van de Wetering MD. Eur J Cancer. 2015 Sep;51(14):2031-8.

Goal adjustment strategies operationalised and empirically examined in adolescents with cancer. Janse M, Sulkers E, Tissing WJ, Sanderman R, Sprangers MA, Ranchor AV, Fleer J. J Health Psychol. 2016 Aug;21(8):1505-15. 

Development of clinical practice guidelines for supportive care in childhood cancer--prioritization of topics using a Delphi approach. Loeffen EA, Mulder RL, Kremer LC, Michiels EM, Abbink FC, Ball LM, Segers H, Mavinkurve-Groothuis AM, Smit FJ, Vonk IJ, Vd Wetering MD, Tissing WJ. Support Care Cancer. 2015 Jul;23(7):1987-95.

Development and validation of the BRIGHTLIGHT Survey, a patient-reported experience measure for young people with cancer. Taylor RM, Fern LA, Solanki A, Hooker L, Carluccio A, Pye J, Jeans D, Frere-Smith T, Gibson F, Barber J, Raine R, Stark D, Feltbower R, Pearce S, Whelan JS. Health Qual Life Outcomes. 2015 Jul 28;13:107.  Free Full Text

Genetic and metabolic determinants of methotrexate-induced mucositis in pediatric acute lymphoblastic leukemia. den Hoed MA, Lopez-Lopez E, te Winkel ML, Tissing W, de Rooij JD, Gutierrez-Camino A, Garcia-Orad A, den Boer E, Pieters R, Pluijm SM, de Jonge R, van den Heuvel-Eibrink MM. Pharmacogenomics J. 2015 Jun;15(3):248-54.

Risk analysis, diagnosis and management of gastrointestinal mucositis in pediatric cancer patients. Kuiken NS, Rings EH, Tissing WJ. Crit Rev Oncol Hematol. 2015 Apr;94(1):87-97.

Long-term cardiac abnormalities after cranial radiotherapy in childhood cancer survivors. Hummel YM, Hooimeijer HL, Zwart N, Tissing WJ, Gietema JA, Voors AA, van den Berg MP. Acta Oncol. 2015 Apr;54(4):515-21.

Finding the right balance: An evaluation of the adequacy of energy and protein intake in childhood cancer patients. Brinksma A, Roodbol PF, Sulkers E, de Bont ES, Burgerhof JG, Tamminga RY, Jager-Wittenaar H, Tissing WJ. Clin Nutr. 2015 Apr;34(2):284-90.

Recommendations for cardiomyopathy surveillance for survivors of childhood cancer: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group. Armenian SH, Hudson MM, Mulder RL, Chen MH, Constine LS, Dwyer M, Nathan PC, Tissing WJ, Shankar S, Sieswerda E, Skinner R, Steinberger J, van Dalen EC, van der Pal H, Wallace WH, Levitt G, Kremer LC; International Late Effects of Childhood Cancer Guideline Harmonization Group. Lancet Oncol. 2015 Mar;16(3):e123-36. Free Full Text

Providing care to a child with cancer: a longitudinal study on the course, predictors, and impact of caregiving stress during the first year after diagnosis. Sulkers E, Tissing WJ, Brinksma A, Roodbol PF, Kamps WA, Stewart RE, Sanderman R, Fleer J. Psychooncology. 2015 Mar;24(3):318-24. 

Weight and height in children newly diagnosed with cancer. Brinksma A, Roodbol PF, Sulkers E, Hooimeijer HL, Sauer PJ, van Sonderen E, de Bont ES, Tissing WJ. Pediatr Blood Cancer. 2015 Feb;62(2):269-273.

Changes in nutritional status in childhood cancer patients: a prospective cohort study. Brinksma A, Roodbol PF, Sulkers E, Kamps WA, de Bont ES, Boot AM, Burgerhof JG, Tamminga RY, Tissing WJ. Clin Nutr. 2015 Feb;34(1):66-73.

A critical review of the use of technology to provide psychosocial support for children and young people with long-term conditions. Aldiss S, Baggott C, Gibson F, Mobbs S, Taylor RM. J Pediatr Nurs. 2015 Jan-Feb;30(1):87-101. 

Clinical implications of malnutrition in childhood cancer patients--infections and mortality. Loeffen EA, Brinksma A, Miedema KG, de Bock GH, Tissing WJ. Support Care Cancer. 2015 Jan;23(1):143-50.

Adrenocortical carcinoma in children: first population-based clinicopathological study with long-term follow-up. Kerkhofs TM, Ettaieb MH, Verhoeven RH, Kaspers GJ, Tissing WJ, Loeffen J, Van den Heuvel-Eibrink MM, De Krijger RR, Haak HR. Oncol Rep. 2014 Dec;32(6):2836-44.

A relational understanding of sibling experiences of children with rare life-limiting conditions: findings from a qualitative study. Malcolm C, Gibson F, Adams S, Anderson G, Forbat L. J Child Health Care. 2014 Sep;18(3):230-40. 

Clinical evaluation of vancomycin dosage in pediatric oncology patients. Sanders SJ, Bijleveld YA, Sinkeler F, Kemper EM, Pajkrt D, van de Wetering M, van Eijkelenburg NK, Mathôt RA. Pediatr Infect Dis J. 2014 Jul;33(7):731-3.

A new method to facilitate valid and consistent grading cardiac events in childhood cancer survivors using medical records. Feijen EL, van der Pal HJ, van Dalen EC, Mulder RL, Bardi E, Kuehni C, Tissing WJ, Kremer LC. PLoS One. 2014 Jul 9;9(7):e100432.